Launching soon — join the list.
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COMING SOON

Neurofibromatosis doesn’t stand a chance.

A new home for families living with NF — support, community, and answers, in one place. We’re building it now.

Get launch updates Who we are

OUR MISSION

Nobody should face NF alone.

Neurofibromatosis touches whole families — parents, siblings, kids. NF Family exists to put support, community, and real answers within reach of every one of them.

Kids’ programs, teen groups, parent circles, and plain-language guidance for the day after diagnosis.

Families connected [CLIENT TO SUPPLY NUMBER]
Support groups & meetups [CLIENT TO SUPPLY NUMBER]
Free resources for the newly diagnosed [CLIENT TO SUPPLY NUMBER]

GET INVOLVED

Find your place in the family.

FOR OUR YOUNGEST

FaithKids

Programs built for our youngest members, so a diagnosis never defines their childhood.

Youth

Teens with NF, together — friendship, honesty, and zero explaining required.

Groups

Parent and family circles that meet, listen, and keep showing up.

Diagnosis

Newly diagnosed? Start here for plain-language guidance on what comes next.

Volunteer

Give time, skills, or hands at an event. There’s a role that fits you.

THE BASICS

What families ask us first.

Straight answers, no jargon — written for the parent reading this at 2 a.m.

Get launch updates
What is neurofibromatosis?
A genetic condition that causes tumors to grow along nerves. It affects people very differently, which is exactly why plain, personal information matters so much.
We just got a diagnosis. What now?
Take a breath. Then start with our Diagnosis pages, and reach out — you’ll be talking with families who have already walked this road.
Is there support for kids and teens?
Yes. FaithKids is built for younger children and Youth is for teens, with groups for parents running alongside.
How can I help?
Volunteer your time or give — both go straight into programs for NF families.
When does the full site launch?
Soon. Subscribe below and you’ll be the first to know.

GIVING

Your giving keeps families supported.

Every gift funds groups, resources, and programs for children and families living with NF.

Give to NF Family

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